Guidelines

The PALS Forum provides a private space for PALS, principal investigators, research coordinators, and Lupus Therapeutics’ staff to communicate with each other about the PALS program.  PALS Forum members can ask questions and enlist feedback from the group or share resources about their education session topics.  This is meant to be a place of support and encouragement, where PALS and research sites can learn from each other and discuss the progress of the PALS program.  In order to make this a safe and cooperative place, there are a few guidelines to follow:

  • At no point should any patient information be shared or posted on the PALS Forum.
  • Questions or challenges that are discussed should be about a specific education topic or a more general problem that you are finding.
  • While we encourage information to be shared and questions to be asked about lupus clinical trials, no specific medical advice should be asked or given.
  • Do not use this site to communicate in case of an emergency related to the PALS program.

 

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